My name is Lexi Pappas and I am 24 years old. I have Facioscapulohumeral Dystrophy or FSHD for short. I hope you enjoy my blog and like my sense of humor šŸ™‚ I like to be sarcastic sometimes, btw.



2 thoughts on “About

  1. Good on you for starting this blog! My beautiful wife and our two sons have FSHD, so I’m familiar with your story… Please keep blogging, keep on talking about your life and experience with this condition!

    Thank you!

    Zach Diamond

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